About LGS
- Like many rare conditions, Lennox-Gastaut Syndrome can be a complete mystery when you first hear about it. Explore this section to get a thorough understanding of LGS—including its causes, symptoms, diagnosis and treatment.
New to LGS
- A diagnosis of LGS is deeply unsettling and can leave you at a loss as to where to turn for help and guidance. We’re here for you. In this section you will find information, resources, and communities of support for the challenging road ahead.
For Families
- If a loved one is living with LGS, the entire family shares in the difficult journey. How can you keep them safe? Find appropriate medical care? Get the support you need? This section gives answers to these and other critical questions.
About Research
- Even as our understanding of LGS grows, there is so much more to learn. From research grants to conferences, from publications to voice of the patient family, this section provides avenues for furthering your knowledge and impact.
Get Involved
- Host a fundraiser. Volunteer at an event. Shop our LGS store. These are just some of the ways you can lend your personal support to our mission. Check out this section to get started.
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Home / For Families / About LGS Treatments Kits

About LGS Treatments Kits

About LGS Treatments Kits are for families who are considering “What’s Next” in treatment.

This comprehensive kit contains information on current treatments, clinical trials, and tips on maximizing your time with your loved one’s healthcare team. Please note that given the comprehensive nature of this kit, it might be overwhelming to some. Please take your time reading through all the materials, come back to them as many times as you need to, and know you are not alone. We are here if you have any questions.

*Due to high postage costs, kits are available for U.S. residents only at this time, but many materials may be downloaded below.*

DOWNLOAD THE ABOUT LGS TREATMENTS KIT

*If requesting a kit be mailed to you, one per household, please*

About LGS Treatments Kit Contents Include:

- How to Use This Kit (download this section)
- About Anti-Seizure Medications (download this section)
- About Seizure Emergencies and Emergency Medications (download this section)
- About Clinical Trials for Seizures in LGS (download this section)
- About Diet Therapy for Seizures (download this section)
- About Neuromodulation for Seizures (download this section)
- About Epilepsy Surgery (download this section)
- Complimentary and Alternative Therapy (download this section)
- Genetics and LGS (download this section)
- How to Talk to Your Doctor (download this section)
- A Handy Accordion Style Carrying Folder

About LGS Treatments Kits are available to LGS Families at no charge, thanks to support by our partners at:

Updated 04/01/25 (KK)

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